Data Summaries

The summaries below include data on all individuals registered with Canadian hemophilia clinics. All individuals in Canada who use coagulation factor concentrates regularly, i.e. those most severely affected, are accounted for.

Inhibitor status was not tracked after 2014.

The most recent comprehensive national audit was completed in May 2005. Between major audits, data is received voluntarily from individual clinics without a specific specified schedule, though ongoing maintenance of data is strongly encouraged (statistical archives are also available for years prior to 2017).

This data was compiled based on information in CHR in August of 2018. Adobe Reader software is required to view the reports.


Individuals with factor VIII deficiency

  1. FVIII stats can 2017
    'Hemophilia A' grouped by:

    1. Severity (Severe ≤1%, Moderate = 1-5%, Mild ≥ 5%); and

    2. Age, according to Statistics Canada age groups; and

    3. Gender (females can be registered if factor levels are ≤40%).

  2. FVIII ped adult 2017
    Same as 1, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Individuals with factor IX deficiency

  1. FIX stats can 2017
    'Hemophilia B' grouped as for those with factor VIII deficiency.

  2. FIX ped adult 2017
    Same as 3, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Individuals with von Willebrand Factor Deficiency

  1. VWD stats can 2017
    Grouped by age and by type.

  2. VWD ped adult 2017
    Same as 5, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Status of Individuals Infected with HIV

  1. No longer tracked in CHR.

Rare Inherited Coagulation Disorders

  1. RareCoag stats can 2017
    Rare Inherited Coagulation Disorders grouped by:

    1. Factor deficiency; and

    2. Severity (Severe ≤1%, Moderate = 1-5%, Mild ≥ 5%); and

    3. Age, according to Statistics Canada age groups; and

    4. Gender (females can be registered if factor levels are ≤40%).

  2. RareCoag ped adult 2017
    Same as 8, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Rare Inherited Platelet Disorders:

  1. RarePlate stats can 2017
    Rare Inherited Platelet Disorders grouped by:

    1. Diagnosis

    2. Age, according to Statistics Canada age groups; and

    3. Gender

  2. RarePlate ped adult 2017
    Same as 10, but age grouped according to pediatric (< 18 years) & adult (≥18 years).

Individuals with C1 Esterase Inhibitor Deficiency:

  1. C1Est stats can 2017
    Grouped by age and gender

Individuals With Congenital Hypogammaglobulinemia:

  1. HypGG stats can 2017
    Grouped by age and gender


 

** Statistical archives are also available for:
2003, 2004, 2005, 2006, 2007, 2008, 2009, 2010, 2011, 2012, 2013,2014,2015,2016.


Visitors since
June 2003:


Dr. Irwin Walker, Director
walkeri@mcmaster.ca

Site Design by: Biro Creative