Data Summaries

The summaries below were produced from the Canadian Blood Disorders Registry, which covers all of Canada except for British Columbia. Data was added for British Columbia where available. . Future reports will be produced from CBDR.

Data format has changed to one PDF file for each Bleeding Disorder set, containing all relevant tables.

This data was compiled based on information in CBDR as of the end of 2020.


Individuals with factor VIII deficiency

  1. FVIII stats can 2020
    'Hemophilia A' grouped by:

    1. Severity (Severe ≤1%, Moderate = 1-5%, Mild ≥ 5%); and

    2. Age, according to Statistics Canada age groups; and

    3. Gender (females can be registered if factor levels are ≤40%).

  2. FVIII patients with an active inhibitor
    Same as 1, but for patients with an active inhibitor during 2020

  3. FVIII ped adult 2020
    Same as 1, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Individuals with factor IX deficiency

  1. FIX stats can 2020
    'Hemophilia B' grouped as for those with factor VIII deficiency.

  2. FIX ped adult 2020
    Same as 1, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Individuals with von Willebrand Factor Deficiency

  1. VWD stats can 2020
    Grouped by age and by type.

  2. VWD ped adult 2020
    Same as 1, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Rare Inherited Coagulation Disorders

  1. Rare Coagulation disorders stats can 2020
    Grouped by age and by type.

  2. Rare coagulation disorders ped adult 2020
    Same as 1, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Rare Inherited Platelet Disorders:

  1. Rare Platelet disorders stats can 2020
    Grouped by age and by type.

  2. Rare Platelet disorders ped adult 2020
    Same as 1, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Individuals with C1 Esterase Inhibitor Deficiency:

  1. c1 Esterase stats can 2020
    Grouped by age and gender

Individuals With Congenital Hypogammaglobulinemia:

  1. Hypogammaglobulinemia stats can 2020
    Grouped by age and gender


 

** Statistical archives are also available for:
2003, 2004, 2005, 2006, 2007, 2008, 2009, 2010, 2011, 2012, 2013,2014,2015,2016,2017,2018,2019.


Visitors since
June 2003:


Dr. Irwin Walker, Director
walkeri@mcmaster.ca

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